I have not yet continued my last post because I, intially, needed a distraction from that hurtful ridiculousness and then all the things began happening all at once again.
I was gifted a pass to Cleveland’s LaureLive weekend musical festival from a dear friend through a local radio station.
About midway through Saturday I started losing feeling in my right thumb. Sunday morning it had spread across the palm and at one point Sunday evening I couldnt feel my pinky or any finger tips. When my entire ride side starting to lock up, I called into my doctor’s office and was reffered to the ER to rule out a stroke.
I was discharged with instructions to follow up with my neurologist for a repeat MRI, since it has been a few years, to rule MS, again. All week the numbness has spread. It’s now in my forearm and elbow, shoulder and shoulder blade. Bizarre!
If that wasnt enough, my littlest furbaby, PNut, started really struggling to breathe today.
He was so lathatrgic and just all around … well, pathetic it broke my heart. We’ve been making inappropriate jokes about him “low-key dying” for about two months now, due to his slowing down and hacking cough but I couldnt have imagined that when I walked into the vet’s office today, I would be hearing a “congestive heart failure” diagnosis. Although, I wasnt surprised to hear his heart is enlarged (the pup has a BIG heart!)
The prognosis is not good, but we will try a routine of cardiac medications over the next week and make the hardest decision from there.
Dear Mr. Zuckerberg,
I humbly submit the following as my dissertation on facebook:
Many, many moons ago, in the age of MySpace, we were able to arrange and re-arrange “The Elite 8”. I bump up or down this lineup was watched and commentated on throughout pop culture. It was a “thing”. As we moved from High School MySpace to the thing all the college kids were doing on the facebook campus. We start friending everyone when we first got there as freshmen. We friended people we met through a friend of a friend at the bar even as sophomores. We started to realize that the more “friends” we added, the more platforms and pedestals we provided. It wasn’t until we were upper class-man that we started to add our family. In giving everyone a platform, we got to see the deepest and also, unfortunately, the darkest parts of their hearts. It hasn’t always been pretty, but the grotesque should not make us look away. We must brave on and look at the carnage the generations before us left behind. Never before had it been put on such vast display, not only for everyone to see, but to others to comment. This gave us the deepest look into the mind of human kind and, man …spoiler alert:… WE’RE FUCKED UP! BUT, the most brutiful part is that in friending our family members, we found our tribe. The people who communicate love in our language. Our tribe can consist of whoever the hell we want. We can still be family, without being friends and we can be friends who become family. That’s our tribe and we get to connect to it, wherever in the world we may be, whenever our tribe is needed.
Thank you, for the wake up call, Mr. Zuckerberg. From this point forward, l shall be using facebook for this purpose alone. #dailywakeupcallfromsteph
I hereby request to be permitted to graduate and henceforth be known as:
Dr. Stephanie Quinzel
IT IS SO ORDERED.
Mark M. Zuckerberg, Fouder, facebook
I need new friends. That’s the new mission.
I need friends who aren’t passively waiting for life to find them, but making their own experiences and enjoying every moment as it comes. FULLY.
I dared greatly to embrace this notion last night and it was hand’s down one of my favorite nights of my entire life. Nothing fancy, just being myself, full on, with no inhibitions.
I liked it. I’m going to do more of this living stuff.
I don’t know how much time I have left, but I do know I’m going to make the most of it.
If you want me to bow
I will stand up straight
You can kick me down today
But I will stand up tomorrow
If you want me to cry
I will gladly smile
I will laugh every day
Until the day I die
If you want me to hate
I will share the love
Depending on my own free will
And not just fate
If you want me to give up
I will struggle through
Continue fighting my battles
And I will never stop
If you want me to walk away
I will be going nowhere
You can push me over the edge
I will just find another way
If you want to break me
I will stay strong
Because I will be able
To still see the beauty
So, dear Life, can’t you see?
I am still a warrior
And there is no way
You can ever defeat me!
~ Patty Van Delft
I heard someone say, “Somedays you eat salad and exercise, somedays you order pizza and binge on Netflix, its all about balance.”
That stuck with me.
Like…somedays you feel top notch and sincerely dont give a shit what anyone says or thinks about you, somedays the wrong glance brings you to your knees.
Somedays youre certain your dog is the best dog that ever existed, somedays your dog takes a shit on the floor right after you take him outside because he’s a prick.
Somedays you believe that marriage is a beautiful, sacred bond that will last forever, somedays you finalize your second divorce and feel like you dont have enough middle fingers to shove in love’s direction.
Somedays you leap into the dating pool while throwing caution to the wind and are optimistically surprised when you meet a nice guy, somedays youre left questioning your sanity after finding the “nice guy”‘s multiple dating site profiles.
Somedays you think family is a precious gift to be cherished above all other relationships, somedays youd like to pack your shit and move into a vast wilderness…forever alone.
Somedays you are in awe of your children growing older and wish you could slow time down, somedays youre certain there is no way you will survive your spawn’s teenaged years and wish death would find you.
“I know now that being afraid of things going wrong is not the way to make them go right. Releasing that fear is knowing there’s no “right” way for things to go” 🙌🏼
Another sleepless night as I sit here poking through the ashes of thoughts in my skull, wanting it to go out, but finding these ambers that kindle the thoughts burning again and again.This whole weekend was like that. I would just put one burning thought aside when another when burn.
It started with a comment. One that could conveniently be written off as a joke and drunkeness had it not been so painfully true. A comment from a “friend”. The friend who always has drunken things to say to me that they can write off as drunken. The problem was that this comment wasn’t of the usual drunken context. It left a horrible taste in my mouth.
It was about Jer and it was a betrayal. It hurt me for him. It made me angry to know that I would bear this laden truth forever, that it would haunt me and that it was delivered so carelessly that no accountability would ever be taken for it. Deniability. Cowardice. Whatever you want to call it, it made me sick.
This is the person Jer often emulates and here was the proof that it was never necessary, that Jer is better than every other man in his life has ever been and he never gives himself credit for it. He weighs himself down with the burden of not being good enough, not worthy, never realizing he always was … at least to me.
But now, armed with this truth, it suddenly became clear that it was never about him being enough for me, it was about me, the kids and I, us … not being enough for him. He always needed more and he always sought it from the likes of these people who would never love him the way we could, but this was his choice. That was the truth and there’s nothing to do with the truth but accept it. It hurts. There’s going to be a grieving process. I’m not sure I’ll ever be able to fall out of love with that guy, wherever he is.
Then as I sat amongst our mutual friends Friday evening at a birthday party with the kids, I looked over at one point and saw Gino’s Dad staring at Jedi. I was instantly horrified by my carelessness. Here, I am sitting with my son, alive and well, the same age his own son should be now had cancer not cast its long shadow into their lives and as he gripped his wife’s hand, I felt like a giant asshole because I taken this precious commodity, life, for granted. Yes, we have an obscene amount of issues presently, but we also have our children alive and available to us daily and if that in and of itself doesn’t make us feel profoundly blessed, well, we’re assholes.
(Note to Self: Stop being an asshole.)
I wanted to text Jer and tell him to stop being an sshole too, to wake up and take a look around at all the blessings he’s been given in his life that he’s taking a giant shit on, but having arrived at the aforementioned realization that Jer’s perspective is not something I can change and still being perplexed by his passing up this time, I just allowed myself to be present in the moment. I left my phone in my pocket, put my arm around my son, pulled his head towards my lips and kissed the top of his head. He’s a teenager and he let me … I count this another blessing.
We arrived home to the news out of Paris. I was instantly horrified by what I heard and saw and with my daughter within ear shot, I instantly thought about how scary this could be for her and how to handle it. I thought about Mr. Rogers advice to “look for the helpers” in these situations, the people that run in despite their fear, the humanity. It wasn’t long before I found the #PorteOuverte (translation: #OpenDoor) that Parisians were using to offer shelter those seeking such after the attacks. That’s what moved me to tears. That’s the story I told my daughter to take away from the situation.
She asked me “Why?” and I didn’t know. We heard some theoritical chatter regarding radical Islam when she turned and asked me why any religion would believe that their God would have them kill other human beings, mothers, fathers, children, siblings. I talked to her about rhetoric and how it can be taken out of context when it suddently occured to me, that even our military falls into Christian rhetoric during acts of war. Praying in the fighting bunkers? Have they never shouted to God during a battle? Could Muslims exposure to this be their entire view of Westerners? These are the kinds of things that keep me up at night.
Saturday and Sunday were filled with goodbyes. Not “see ya later” types, but last words you ever get to say to someone type goodbyes. Saturday, I received word that my Uncle was in the final stages of dying. As I grappled with the idea of getting in my car and making a pilgrimage to his side, I stopped and closed my eyes and thought of our last conversation. It was Labor Day weekend. The night before my world blew up. But, we had laughed together and smiled, talked and hugged. His last words with me were: “I love you very much”. I decided I was ok with that. That’s how I want to remember him.
Sunday, I found out that a woman who shares a scleroderma diagnosis with me and whom I have come to greatly admire, was also in her final stages of life. She asked for my mailing address and told me that she wanted to send something, that it would be a goodbye but it wouldn’t arrive until after she’s “flown away”. I got to tell her that I loved her and that she had reminded me of my worth as a human, whether I was sick or not and that I would always be grateful for that. I promised to stay involved in her precious granddaughter’s life. It was bittersweet in that Im glad I got to say those things to her, but it was goodbye.
With all of this sentiment about the preciousness of life and gratefulness abundant in my heart, I told Jer that this weekend’s events had brought about a realization of the ridiculousness of our situation. I told him how blessed we had been to be given this life, together, with the kids and just how much it grieved me that we had taken it all for granted, but worse still, that there was absolutely nothing more I could do to change his perspective, to make him love me, us, the way only he can and it was time that I stop beating my head against the wall and tearing my heart out of my chest offering it up to him with vulnerability, trying to bring about an absolution that may never come. It was time for acceptance of all the things he had said and done proving who he is now and to grieve the loss of the love of my life.
My love asked me if this meant I was done, but there’s nothing for me to be done with. It was never my choice. I gave everything, was his best lover, his greatest friend and biggest fan. I helped all his dreams come true, stood by his side through it all and the first time I faltered, he could not bear the weight on his own. It was not enough.
The truth is, I wish that he could materialize from my dreams and live them out with me for the rest of our days. I don’t know if I’ll ever stop dreaming of him making it right or taking up the fight for our marriage and family. It is my heart’s greatest desire, but I regress and accept, as I must.