I had a VERY bad experience with a doctor last week that I am still processing.
Turns out the same doctor who told me to get chemotherapy to kill the antibodies, which I tested positive for in my blood, now believes that my condition is “psychological”, or at least the pain I have been experiencing in my eyes.
I get what psychological pain is and Im not discounting that this is likely a factor that Im dealing with.
However, why would you 1.tell someone to get chemo for something psychological, 2.how does a psychological disorder produce antibodies in your bloodstream? and 3.my vision is still going so what the hell are we going to do about the antibodies.
No matter how much you prepare and educate yourself, its just not enough when you actuality hear the recommendation for chemotherapy from a doctor.
I do not have cancer. I have a rare autoimmune retinopathy that is stealing my vision and in time will cause bilateral blindness. After months and months and a plethora of testing, bloodwork was sent to the one lab in the country that is able to detect antibodies that attck the eyes. I have them. This is a new area of medical science and detection so not a lot is known about causes or cures. The current “theory” is that you go through chemotherapy as immuno suppression, essentially to reboot. Like chemo for anything else, you commit to months or year plans and there is no guarantees. It would nor be rhe most heavy duty form of chemotherapy but it would be strong. I’ve been told that I need to weigh the cost v benefits of this.
My dark humor & sarcasm could spin off in hyper drive in defense of ‘what-ifs’ at this point. But the bottom line is that these options suck and frankly Id just like to raise my middle fingers in their general direction at this point and call it a night