“The mind that has conceived a plan of living must never lose sight of the chaos against which that plan was conceived.”
~ Ralph Ellison, Invisible Man
I spent last week inpatient. After changes to medications and a respite of sorts, I came home Monday. Around 5pm, my neurologist sent me a message via their medical messaging system to tell me that we were out of options and would need to seek outside opinions from Case Western University Hospital and Cleveland Clinic; and also, we’ve already done this. This means we have finally arrived at immunosuppressive therapy to turn off my immune system and turn it back on; you know, like a computer. I start with steroids today and will start chemotherapy in the coming weeks which will last 4-6 weeks and then again at 6 months. (AND possibly also brain surgery to place a shunt.) Finally, I resigned from work on Friday.
I have so many things running through my mind. They’re screaming as they lap one another. On the surface, I feel … peace? (I think that’s what they call it. *shrugs*)
The rest of it is really hard work, mindfulness, that only I can, have and will improve upon doing for myself.
Also, I have never felt better mentally and/or more sure of myself. I don’t know what’s going on now, or what will happen in the future, but there’s something delicious about ambiguity and I know whatever it is I can handle it. I’ve got nearly 20 years worth of blogging here to prove it, no matter what the ‘shitty-committee‘ that meets in my head likes to say. There is batshit crazy POWER in being fearless. This is next level. The proof is in the pudding, folks. I have a 100% survival rate this far after all. *smiling broadly*
HOW ITS GONNA BE:
Diva, while you may one day fear becoming just like your mother, just remember this, Im a strong, mutha, baby girl.
—Mitch Albom, For One More Day
The people who will not sit with you in your dark, do not deserve your light. Please choose where you use your time and energy wisely;
and finish what you start.
Perhaps it is the steroids treating my pneumonia talking, but as awful as I feel physically, my heart is hella happy.
First night of summer and my baby girl finally spread her wings and socialized. Met knew people. Genuinely laughed. Bounced up the stairs at 10pm just making it home for curfew and the thing she’s been missing for so long….that happiness, that genuine lust for life as she relayed the events and conversation of her night.
It bound up everything in me that had been emotionally destroyed.
I can’t explain it beyond that. I’ll take it.
I missed a call from the police department today. With a son with special needs living on his own, a newly licensed teenage son and a teenage daughter with mental health concerns, getting a voicemail with an officer/contact information but nothing else, that’s not cool!
I did what any mother would do and switched back and forth between attempting to reach the officer and my kids. Murphy’s Law: Once I got the kids checked off, I got through to the officer. He’s following up on a telecommunications harassment complaint.
To make a very long story short: I had to reprimand my daughter about something she posted on social media about the boy who randomly slid his hand up her shirt. Yes, HE harasses her, HE is dating her best friend since 1st grade and friend takes his side, HE bullies my daughter at school to intimidate her from talking, her mental health took a huge hit, I had to pull her out of the school, but she was reprimanded and had charges dangling over her head because of talking about it, yet this little fucker receives no consequences. His mother said, “My son wouldn’t do that”.
PARENTS: LISTEN! We’re all human and flawed. Yes, even your child. Believing that your child just simply isn’t capable of doing something is a poison like no other. If we do not have uncomfortable discussions with our children, we will only create monsters of privilege with no accountability. (See:Trump)
This whole situation is bringing up unpleasant memories. PTSD in full effect. I just don’t understand how this is still happening 20 years later?! That’s fucked up.
The conversation I had with her was to the point and unremarkable. The disgust and despair I feel for having to have had it at all … I don’t even have words to describe.