i’m currently dealing with a somewhat life or death scenario. if you’re wondering how something can be somewhat of a life or death situation, you’re not alone. in summary, it’s because the doctor currently in charge of me medically has decided he’s some great all knowing wizard who is keen on assuming that the intercranial hypertension is being caused by a medication ( which ive been told I shouldn’t stop taking by the doctor prescribing) even in the face of lab results disproving the theory and sending you home, despite everybody you know and anything any us could find on the internet saying the condition requires immediate medical treatment.

it’s a fairly common thing for people with scleroderma to develop serious problems with their. Ital organs (heart, kidneys). i don’t know how much more patience i can extend here. all I know is that something is off and I want to get to the bottom of it. this is not conducive to my mental health.

if anything should happen please transfer custody of my beloved children and house to my best friends, Tess and Pat. although it wasn’t easy, we have discussed that these are my wishes.

facing mortality is tough, especially when it’s your own mortality and you’re a single mother. honestly, if im going to die, so be it. im not afraid to die. the thought of not knowing what might happen with my kids, well, i wouldn’t wish this on my worst enemy.

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