Received an email from my new neurologist at the Cleveland Clinic today regarding testing results. There is a “significant” issue with my sympathetic nervous system. I need more testing. Blood, imaging, biopsy. The wind had already been taken out of my sails because I’m currently dealing with a flare up with my gastroparesis. This lovely app on my phone indicates that my “quality of life” has dropped two points in the past month. This is an indication that I need to return to a liquid/mush diet. Perfect timing since I’m hosting extended family for Christmas dinner (insert heavy sarcasm)
I really try to put on the brave face, push forward and not let the disease rule. Today, I just need to collect myself. Back on the grind tomorrow….