Diagnosis

After almost 8 months of eye pain, vision loss and test after test that led us nowhere, I got an answer today and Im still not sure if it really is one or a definite answer. I still don’t know if can move forward with it or get proactive about it. I guess it’s an answer. A diagnosis, but the PROGNOSIS is questionable. I thought I would have more relief, but I just feel … numb.

I feel confused now thinking back on it. I have questions. Why didn’t I ask them?

The answer was central vision loss. That wold explain why my eye is missing details, i.e. can’t read small print, can’t focus, miss details in faces.

But what caused it? Is that why bloodwork is needed? Will the bloodwork only support the diagnosis or provide a prognosis as well? And what exactly should I be doing in the meantime? Is there anything that I can do? Should I be learning fucking braille? Why wasn’t it found by Batesy? (different neuro-opthamologist) Different equipment? Different test? Does it mean its gotten worse?

Im just fucking confused.

I need to make some phone calls.

It is what it is

Yeh. It’s been one of those days.

I cried. A LOT. Just bouts, or spells, of crying sporadically. Yes, like a crazy, hormonal woman. Just like that.

The first crying spell came in the car ride with my Dad to DBT this morning because it occurred to me that I had an appointment with Dr. Sue this afternoon and had no way to cover my co-pay because of the ongoing expense of DBT. That sucked.

Then I just couldn’t get it together from there. This led me to “call in reinforcements” for my emotional walls and I completely shut down and was unfocused for much of DBT. I was asked to “check-in” for the day and was evasive. I just would not. Even this small opening to utter words made the tears start again.

When getting in the car to head home with Mom, I was instantly agitated when she inquired if I “think this is working”. This being DBT. As if it were some magical wand that could be waved around and “POOF!” *all better*. Then, I snapped at the kids which made me feel horrible. So again, the tears came. I shoved headphones in my earholes and cranked some music which wasn’t meant for soothing. Obviously, that was unproductive. Oddly, no, not oddly at all food was the rescue. Gross but instantly gratifying, McDonald’s food. (Note to self: Back to food log, do the next right thing.) I definitely don’t want that to get out of control again.

The thing that actually did help, was sharing my new slideshow and music app on the iPad with Mom and the kids. There’s something about soaking in good memories.  (Side note: Mom seems more emotional lately too – this also made me snap back into emotional shape. That’s deep rooted, but not going there today.)

Talking with Dr. Sue also made me quite emotional, but it was a good conversation.

Dinner with the family at the table worked well at improving my mood, as well as working on a project together. I had the kids help me prepare a care package to my dear friend Darryl in Afghanistan. I was also to get some validation from therapist Lynn about my frustrations with DBT. Bottom line: I need to lower my expectations and just attempt to take away 1 new thing that works, for me, every session.

Here, at day’s end, I feel more at peace with the world that 12 hours ago when I was contemplating another inpatient stint. Really, its the last thing I want, well suicide would be the last I want and if it stops that, then I suppose it’s a very desirable thing when Im not feeling safe with myself.

I don’t know what tomorrow will bring, but I’m happy to have gotten through another day.

As Diva pointed out with a laugh the other day, I already have a life worth living because of my amazing kids and wonderful family, I just have to learn to LIVE it from moment to moment.